Comments for Adult Mito.

Comment on Files by Mike Kendall

Mike Kendall — Mon, 20 Sep 2010 22:52:14 +0000

Great! We have a lot to share as it is a mission of ours to inform. Please email me and I can start sending you the files. Feel free to call or email when you wish to skype. 404.720.0820 ext708

Comment on First views – reactions by Andrew Alexander

Andrew Alexander — Fri, 25 Jun 2010 08:35:00 +0000

This is the first time I have looked at this site, I must say that I like it, it is so easy to get around. To have a site for adults is good this way the information will be easy to find and you dont have to get passed all the childrens stuff to find it. Well done Rowly keep the good work up and if there is anything that you need help with just let me know, I hope this site becomes the site that everyone who has mito will look at and help in it development…..

Comment on Files by kgraff

kgraff — Sat, 22 May 2010 10:28:13 +0000

Thanks for clearly identifying them as PDF files.

For Safari users such as myself (iBook G4 running OS X 10.4.11) if you ctrl-click the links for PDF files then choose “Download Linked File As” from the menu it is less likely to crash Safari than if you click the link to view within Safari.

Comment on Files by Carol Williams

Carol Williams — Mon, 10 May 2010 10:55:44 +0000

Well Rowly these “Files” are certainly informative already I have learnt new stuff and I have only had a quick look … your doing a grand job and whats wrong with calling em “files”

Comment on About by mitoscottie

mitoscottie — Sun, 09 May 2010 02:41:48 +0000

Thank you Rowly! As ever, your dedication to Mitovia is inspiring. I hope this website will become the voice of the adult patients and their caregivers.

About the video …

I love the concept! Unfortunately we have to be seen to be “out there”! I am happy to see more and more pictures coming in and especially those pictures which show us when we have our support systems in place.

In my opinion … James Bond music (at least that is how I identify it!) portrays a great deal more energy than I feel at any time! How about Forrest Gump music which people would associate with disability … or some sleepy time dreamy music?

Again … to go along with the James Bond music, there are those targets and it gives me a creepy feeling to have a target right on my good eye! Forrest Gump moved from country to country and had many locations. Would grouping the pictures of people by their country be an idea to work with … maps of countries or just the names of the countries. It makes sense to show the internationality of Mito.

I like the way you have faded in and out with some pictures but not all of them … this adds interest and variation. It’s going really well, Rowly and will be great when it is finished!

Comment on First views – reactions by Carol Williams

Carol Williams — Thu, 29 Apr 2010 15:22:20 +0000

For something that was thrown together, I found this site very easy to get around and for me … the easier the better. It is so good to see something up here for adults as I sometimes wonder if we too are invisible considering how much effort people put in for children … we adults suffer just as much or maybe more because we know whats coming and it’s not good.
Good job too on the videos look forward to more content and the sharing of our stories.
Also if there is anything I can do to help with any thing Rowley please let me know and if I can I will.