About
On April 10, 2010 I made a request via the Mito Adults Facebook page for people to submit their pictures or video clips to help raise awareness of this devastating, invisible disease. This was inspired by a similar successful appeal earlier for images of infants and children by others. (I’ll credit them here somehow when I figure out how, it’s late.)
Newly created without much forethought or design applied, this site adultmito.net is intended to provide:
- A source for raising awareness of mitochondrial diseases in general, but with focus on how adults are affected.
- An initial single point for those adults recently diagnosed or in the process of getting a diagnosi, to access relevant information on everything to do with mitochondrial disease ‘Mito’.
- Support to those affected by facilitating contact with others who have an understanding i.e. fellow Mito sufferers.
This site is hastily thrown together in order to host some initial draft videos and make them accessible to as many as possible in order to get more ideas and more content – images of adults with Mito, to illustrate the extent and nature of the conditions. As time goes by I hope to be able to create a more coherent structure with feedback from visitors, and hope that the content will be driven by those visiting.
Those are my late night, early morning ramblings. I hope I (and you) can make more sense of them later. In the meantime look around, make some comments and let us really bring some momentum to the cause of raising awareness of Mito.
Rowland Dicker
Thank you Rowly! As ever, your dedication to Mitovia is inspiring. I hope this website will become the voice of the adult patients and their caregivers.
About the video …
I love the concept! Unfortunately we have to be seen to be “out there”! I am happy to see more and more pictures coming in and especially those pictures which show us when we have our support systems in place.
In my opinion … James Bond music (at least that is how I identify it!) portrays a great deal more energy than I feel at any time! How about Forrest Gump music which people would associate with disability … or some sleepy time dreamy music?
Again … to go along with the James Bond music, there are those targets and it gives me a creepy feeling to have a target right on my good eye! Forrest Gump moved from country to country and had many locations. Would grouping the pictures of people by their country be an idea to work with … maps of countries or just the names of the countries. It makes sense to show the internationality of Mito.
I like the way you have faded in and out with some pictures but not all of them … this adds interest and variation. It’s going really well, Rowly and will be great when it is finished!